(This is part one of what I expect to be a three part series.)
3:30 in the morning.
Max walks in and wakes us up, telling
us that his tummy hurt and he was sick. He threw up in his bed.
For the past week, he had been sick
with what appeared to be hand foot and mouth disease. That day he
had finally seemed to be over it and was eating again. Sarah gets up
to go look and sure enough, he threw up all over his bed. I ask if I
can help clean it up, but she says she has it. It is a top bunk
against the wall. As unpleasant as it may be, it really is a one
person job. Meanwhile, I am in bed comforting Max. Something isn't
right.
I know he is sick, but something is
wrong, really wrong and it takes me a moment to wake up enough to
realize what that is. He smells like nail polish remover.
I'm an ER nurse. I know what that
smell is and what it means, but...no way. Max isn't diabetic. No
one related to us is diabetic. Can't be.
And yet I look down and see a groggy
little boy breathing fast and deep. My hand against his chest can
feel his heart pounding away like mad. Maybe he has a fever. I get
(or more probably it was Sarah, I don't really remember) the
thermometer and check. No fever.
What could it be? No, what else could
it be.
After lying there for a minute thinking
about dehydration and ketones and the danger of acidosis, I take Max
into the living room and sit with him on the couch. How long until
Walgreen's opens and I can get a glucose meter. Hell, we should have
one of those around anyway. No way that he has diabetes, but I would
sleep better knowing that for sure.
By this time, sleep is out of the
question. Walgreen's doesn't open until 9am here. That is hours
away. If he is diabetic and in DKA, I shouldn't wait. All in all it
took nearly three hours for me to shed the denial, realize the
situation, and get moving. I'm a little ashamed of that, but there
is a special dread ER workers have about taking themselves or their
families in to be seen in an ER. That takes something pretty big to
overcome.
I told Sarah I was going to my ER to
get his blood sugar checked and she got ready to wake Michael and get
them dressed. I told her to stay home, don't wake Michael. I'll
call if something is wrong. Hadn't quite shaken all of that denial
off yet, really and there wasn't anything she could do there other
than wait and worry. There would be plenty of time for that later.
We drove to my ER and checked his
sugar. It was 469. DKA (Diabetic KetoAcidosis). My co worker whispered, “Shit. I'm so
sorry” and I walked out front to check in to the ER.
I snuggled up against him on the bed
while they started the IV and drew blood. I knew the script and let
Max know what was coming. He was sick, but he understood. There
wasn't much fight in him at the moment. They started the process for
a transfer. The hospital where I work doesn't have pediatric
services. Dr. Monick, the ER physician on duty that morning knew a
pediatrician she recommended to us who just happened to be on call
that morning.
I snuggled up in bed with Max trusting
my co workers to do what I had seen them do so many times before. I
let go of the burden on having to be on guard and just held Max. I
started to grieve. I didn't know what was next, but I had a
good idea. I have seen enough diabetic complications. I could see
the bare outline of the struggle coming up and didn't want it. I
grieved the loss of perfection in my little boy. I wanted so bad for
all the best for him and now this. As a parent. I had an idealized
version of my kids growing up. It never included diabetes.
Then I stopped, as much as I could
anyway, because it wasn't about me. I wasn't the one who would deal
with a lifetime of extra burden. This was about Max. And the best
way for me to help him was to stop thinking about what was lost and
start figuring out the best way to deal with the new reality that was
in front of me.
I still had to call Sarah.
She sounded as confused as I was when I
first realized what was happening. News of that magnitude takes a
little while to process and she was coming in to all of this a little
late. She made it to the hospital just in time to see us loaded up
in an ambulance for the drive across town.
Next: Hospital stay.